Well hey there guys; Long time no blog. Bet you were wondering what was going on. So here it is……
I’m still breathing.
Went and saw a Carcinoid Cancer Specialist in New Orelans. He sent the extra liver tissue from my biopsy off for some super duper testing. Got back the results and it is declaring that there is a 96% probability that my primary is in my mid gut. Hooray for known primary!! So there is a game plan. Before I get into it please know that I want to know all the questions and concerns you have, ask them. Even if you think it’s dumb or I have answered it before ask it anyway. It helps me so much when things are asked because I get to view from different points and helps me to process differently and think of things I need to address.
The Game Plan
Remove primary cancer located in mid gut
Remove a section of small intestines
Remove a section of large intestines
Remove all lympnodies
Remove current tumors in liver and applying chemo
Exploratory on remaining intestines, appendix, rectum and pancreas.
Doing all in one kick ass surgery. And I’m going to have one bitchin scar.
Ok, you can close your mouth and take a deep breath now.
Now here is the breakdown for you.
They are removing the intestine sections because of where the primary is located it is filtering the cancer cells in high amounts through everything that is directly near it.
The lympnodies are going because those are the primary filters of the cancer cells. Will be sent off for testing.
I wasn’t really using my gallbladder anyway and besides, the injections that I do monthly cause gallstones. So its removal is to avoid more mumbo jumbo.
My liver is going to go through debulking of tumors as long as my body will allow the doctor to debulk. With the removing of these tumors I can go into carcinoid crisis and my heart can give out so they have to remove them very cautiously. If I go into crisis they will stop and the remaining tumors will have direct chemo therapy applied with a cotton swab. All the removed tumors will be sent off for testing.
Every 2 out of 100 patients have issues after the surgery with drainage. In the event that this happens they would either go back in and repair or insert a drainage tube until leakage stops.
I will be in ICU for 2 days, the hospital for 5-6 days and then staying in the American Cancer Hope Lodge until I can go home. The surgery is scheduled for November 20th. I have pre-op November 19th. I will be in New Orleans November 18th – December 4th. For the most part we have figured out who will be helping Chris with the boys for those 2 weeks and still finalizing who is going with me as care givers. Still need someone to be there for the initial surgery; Nov 19th – 26th. (Either 1 person all days or multiple people covering the days).
I don’t know what could be more fun; this surgery or a trip to Disney. Such a close call.
Everything will come together if it is God’s will. But praying that a money tree grows in our living room over night can’t really hurt.
Or can it………….